Hello
everyone! I thought I would give an update on the blog because I know a lot of
you are wondering what’s been going on with Oaklee. The answer that I have at
this moment is I don’t know. I don’t know. The doctors don’t know… It’s pretty
much a waiting game at this point. If you want to know what happened/happening
then please keep reading.
Early
Saturday morning (May 6th) Oaklee woke up in the middle of the night (not like her)
crying. Zack gave her a bottle and she went right back to sleep. He came back
into our room and said she felt really hot. I took her temp and she had a temp
of 101. I thought “Oh great, she has a nasty virus.”
She had
a temperature all of Saturday, even when I gave her Tylenol. She was EXTREMLY
fussy. I’ve never seen her act the way she did. She was kicking and screaming
in a way a two year old would throw a tantrum at the store for not getting a
treat they wanted. It just wasn’t like her at all.
I
decided to just stick it out for a day and see if she woke up Sunday feeling
better. Sunday morning came and she still wasn’t feeling well. At this point
she had a temp of 102.4. She was screaming constantly and didn’t want anything
to eat or drink so I decided it was time to take her the Instacare.
We
brought her to the instacare and he noticed one of her ears were red. Bam! He instantly
diagnosed her with an ear infection, gave us a prescription and sent us on our
way. I thought, “Great! We will give her antibiotics and she’ll be better in no
time!”
She
continued to have a constant fever on Monday and Tuesday. She was starting to
eat and drink better but that’s the only thing that changed. On Monday evening
I pointed out to Zack that I noticed she wasn’t crawling. She would only army
crawl and it was slow and she would cry like she was in pain. We called her doctor’s
office and they asked us to come in so they could have a look. The doctor
looked her over and requested to have some x rays done the following day to see
if she had an injury we didn’t know about. We went in for X rays of her arms
and the doctor called back later that day saying it showed inflammation in her
elbows and requested to have some blood tests done.
Wednesday
afternoon we finally got the call saying that the blood test showed markers for
inflammation and that they spoke to an ortho specialist who requested we go to
the ER immediately because it could be something serious. By Wednesday Oaklee’s
fevers had gone but she was still extremely cranky and would not crawl or stand
up.
We
arrived at the ER and the doctor did more x rays on her legs. It came back
showing inflammation in one of her knees. They decided to admit us, do more
blood work and we would stay until they figured out what was wrong. The doctor
went over things from
Lupus, juvenile rheumatoid arthritis, some sort of
autoimmune disease to cancer… As a parent the word cancer takes your breath
away.
We
spent Wednesday, Thursday and Friday in the hospital running test after test.
They took her blood again on Wednesday and we got the results back on Thursday
showing that it still showed markers of inflammation but that it had gone down
a little. The nursing staff and doctors came in the room wearing full on hazmat
suits because they weren’t sure what she could have. They also did a test for viruses
and the staff had to wear all that stuff until that test came back. (It came
back negative) The doctors asked us questions about our history and Zack had
mentioned he had
Kawasaki disease when he was younger. The doctors decided to
test for that, just in case. That meant that Oaklee needed to be put under to
have an
echocardiogram
to make sure her heart was okay. We had that test done and everything came back
normal.
They
sent us home on Friday with no real answer. They said if she continues to get
better and the inflammation goes down they suspect she got some sort of virus
and her body reacted in a weird way towards it. If the inflammation continues
and she isn’t moving much then they suspect she has
juvenile rheumatoid arthritis… We go back
in for more blood work on the 22
nd and the doctors will go from
there…
I just
wanted to update everyone who wanted more answers or had any questions. We also
wanted to thank everyone for your sweet messages and prayers. It gives us so
much comfort knowing we have so many people who love and adore Oaklee. At this
time we ask for your continued prayers and I will update as soon as I know more
answers myself. As of right now Oaklee is crawling in her normal position. She doesn’t
crawl as fast or as often as she used to but seems to be improving everyday so
we are very hopeful.
Talk to you all soon.
Love Always,
The Crazy Collards
